Sickle Cell Disorders (SCD)

Sickle Cell Disease/Disorder (SCD) is the world’s most common (mono)genetic disorder.  The sickle cell gene is more widespread in areas of the world that either are or once were malarial. In England, SCD mainly affects those of Black African, Black Caribbean, Indian, Mediterranean and Middle Eastern descent.

Sickle cell disorder (SCD) is the most common single-gene condition in England, with 15-20,000 people living with SCD. It is a life-long condition characterized by severe pain, anaemia and long-term organ damage. SCD is very variable both between different people and within the same person over time. The aim of this project is to co-produce evidence, working together with people living with SCD of: 1) barriers to employment and 2) enablers to employment. The project is funded from January 2018 to January 2020

The project is led by the experiences of voluntary organizations for people living with SCD:



The Sickle Cell Society




OSCAR Sandwell Organization for Sickle Cell Anaemia Research & Thalassaemia Support